I am seldom at a loss for words. Last Friday night at a football game I was left that way. My daughter’s cheer coach secretly organized a surprise for my family. In all my life I’ve never, we’ve never received so much love and support. It is beyond over whelming.
The shit that comes with brain rot or any chronic, degenerative disease is enough but when you add the medical bills it only adds to the stress. To be honest I don’t think about the bills anymore. We try to concentrate on LIVING. And laughing and loving and traveling and appreciating the moments. Because when I think about the asshole at the Insurance company who decided Ataxia didn’t really require MRI’s or CAT scans or blood tests or a spinal tap or any of the other plethora of barbaric tests Patrick had….that this asshole gets to decide they wont pay for this stuff because its just not really necessary and they have no fucking clue what Ataxia is…I’d like to punch him or her in the face and ask how they can live with themselves. I cannot go there. I just can’t. No room or time for that and it does not promote a peaceful heart.
I instead focus on the fact that we have an amazing, caring doctor and time. TIME. More precious than I ever imagined it could be.
As I age I have let forgiveness come easier. I let “thank you’s” roll off my tongue without pride now, I let the little things go, I choose to concentrate on the good. But receiving is a new one to me really. To us. The amount of money that was raised for Patrick’s trike in such a short time is beyond description. And for both of us it is uncomfortable and weird and strange and joyous and crazy. It can seem a tad uncomfortable when people are GIVING to you. We are slowly learning to gracefully receive.
And we cannot express how grateful and appreciative we are. This trike is a physical way to have freedom for Patrick as well as a mental one and we’ll never EVER be able to express how kind , thoughtful, loving and appreciated this trike is. THANK YOU!
I may sell workout DVDs and Shakes and help people get fit but I know my job is much more than just a “coach”. That lives change and confidence grows and clients battle and win against depression when their physical body is healthy. That woman with major food issues come to ME for help in overcoming that. That fitting into your “skinny jeans” is much more than just “wow Im skinny now”. Its why I do what I do. Because it changes people much more on the inside than it ever does on the outside.
And a little cheer squad in the middle of Colorado might go unnoticed in most circumstances. We are not much different than the million other cheer squads in small town America. Friday nights, football, pom-pons, hair up in ponytails, tumbling, parents watching in the bleachers. But to me this little cheer squad is much more. Im betting most of them are. They are family and amazing and gracious and self-less and a major support system for my daughter. And together, in just over 24 hours, they raised over $7,000 for a trike. So one guy could taste some freedom again.
Inside most people is much more than you’ll ever see on the surface. Thank you to our community, family, friends, and to Jessica & the Palmer Ridge Varsity Cheer Squad and their parents! Ride On, Patrick! 🙂